And now, apparently, he doesn’t. We had the unofficial diagnosis from the school district for about 6 months before the developmental pediatrician told us he doesn’t meet the criteria. The school still uses the diagnosis as a basis for his services, but they have voiced their uncertainty to us as well. He’s three years old, so we don’t really know if any label will eventually stick.
Having the ASD diagnosis was scary and uncharted territory for us, but having the diagnosis taken away six months later makes the territory even less charted! Our son still presents with many of the signs of Asperger’s. He’s getting OT, sees a social worker, and will begin a speech group as soon as we can afford it. His behavior at home is troubling, frustrating, and we don’t know how to deal with it. We don’t even know if there is a “cause” for it – such as Asperger’s (or something else).
I know that labels don’t mean anything and that my son is complex (as every person is) and can’t be completely described by a single word like Asperger’s. But in some ways, labels do matter. Labels get you more services. And labels get you acceptance into a group. I don’t fully fit in with the “typical” moms; the issues we deal with are not the ones they deal with. But I kind of feel like we’re on the fringe of the ASD community – are we in that group? Do we need to be? Does it matter?
Who knows. All I know is that my son has struggles. And we are going to help him with those struggles however we can and for however long it takes because we love him and we know how much potential he has. And I guess that’s what really matters in the end.